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Transitioning from Pediatric to Adult Care

Start Early
Begin the transition process well in advance to allow sufficient time for planning and coordination between the pediatric and adult healthcare teams.
Ideally, start the transition process around the age of 14-16, depending on the individual's needs and developmental stage.

Identify Adult Healthcare Providers
Research and identify adult healthcare providers who specialize in the specific medical needs of the individual.
Seek recommendations from the current pediatric care team, support groups, or other trusted sources.
Consider factors such as location, expertise, insurance coverage, and compatibility with the individual's preferences and goals.

Schedule Transition Visits
Arrange transition visits to the adult healthcare providers before fully transitioning from pediatric care.
During these visits, meet with the adult healthcare team, discuss medical history, establish rapport, and ensure continuity of care.
Use this opportunity to address any concerns or questions regarding the transition process.

Compile Medical Records
Collect and organize all relevant medical records from the pediatric care team, including diagnoses, treatment plans, medications, test results, and any specialized care documentation.
Ensure that the adult healthcare providers have access to these records or facilitate their transfer securely.

Understand Changes in Healthcare Coverage
Review changes in healthcare coverage that may occur during the transition, such as transitioning from parental insurance to individual coverage or exploring options for public assistance programs.

Promote Self-Advocacy and Independence
Encourage the individual to gradually take a more active role in managing their healthcare needs and decision-making.
Support their development of self-advocacy skills, such as communicating with healthcare providers, understanding medical information, and managing appointments and medications.

Explore Supportive Resources
Research local resources, organizations, and support groups that specialize in helping individuals transition to adult care.
Seek guidance on navigating the transition process, managing healthcare transitions, and accessing community resources for ongoing support.

Plan for Transfer of Responsibilities
Collaborate with the pediatric care team to develop a plan for gradually transferring responsibilities from the parents or caregivers to the individual.
Address topics such as medication management, appointment scheduling, health insurance, and understanding and communicating health information.

Facilitate Communication and Continuity of Care
Ensure that there is clear communication and coordination between the pediatric and adult healthcare teams during the transition process.
Facilitate the sharing of medical information, treatment plans, and any relevant updates to ensure continuity of care and a smooth transition.

Remember, the transition from pediatric to adult care can be a complex and individualized process. It's important to consult with the current pediatric care team, the new adult healthcare providers, and any other relevant professionals to address the specific needs of the individual and ensure a successful transition.

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